My son Martin has Moebius, athroygroposis, and scoliosis, as well as other problems. He is now 30 years old and dad to Alfie, age 8, and AJ, age 7. He is on the autism spectrum, has 20% restriction on body movements, and does not feel pain, so he needs to be checked over after a fall. He hates being labeled and says he was born this way – it is all he knows and likes to get on with it. I have kept in touch with some of the MSF members since Martin was around 4 years old and it has been great to watch them grow or hear their news. This has been much easier with the internet.

Pauline—Mother of son with Moebius syndrome