States within the United States offer different programs to aid families with medically complex children.
Check to see if your state has a Health Insurance Premium Payment (HIPP) program. HIPP may pay all or part of the family’s group health insurance premium (monthly cost), co-payments, and/or deductibles. This program is for those eligible for Medicaid and who have employer-sponsored group health insurance available to them. Programs vary by state and not all states offer this program.
You may also want to see if your state has a Medicaid waiver to receive Medicaid, regardless of income. Check Medicaid’s State Waivers List for more information.
A Kid Again helps “families caring for a child with a life-threatening condition feel ‘normal’ again by helping them gain back moments of positive, family-shared experiences and memories.” The program helps families attend professional and collegiate sporting events, theme parks, zoos, mini-golf, arcades, and holiday parties.
Icing Smiles “provides custom celebration cakes and other treats to families impacted by the critical illness of a child.” The non-profit connects you with local bakers in your community and covers the cost of the cake.
Magical Moments Foundation is a wish-granting organization that provides children with facial differences magical adventures and experiences, such as meeting celebrity chefs, Grammy and CMA award-winning musicians, Hollywood artists, and Olympic and professional athletes.
Tubie Friends is a non-profit that provides stuffed animals with feeding and breathing tubes. Children can see an animal that has similar equipment to what they may receive surgically.