The Moebius Syndrome Foundation, the nation’s largest organization dedicated to the support of individuals and families with Moebius syndrome, is proud to announce Dina Scalone as its new Executive Director, effective July 1, 2018.
Scalone has spent the majority of her career working in the nonprofit sector, most recently with Easterseals Blake Foundation in Tucson, Arizona, as their Chief Philanthropy Officer. EBF is the largest nonprofit organization in southern Arizona, with an annual budget of more than $45 million. Nationally, Easterseals is the leading advocacy organization for individuals with disabilities. Dina is experienced in working with non-profit boards to maximize their impact and broaden their reach nationally. She recently received a certificate in nonprofit board consulting through BoardSource.
Scalone earned her Bachelor’s Degree in Psychology from the University of Rochester in New York and a Master’s Degree in Rehabilitation Counseling from the University of Arizona.
Dina is a part of our rare disorders community, as her father, brother, and sister were all affected with osteogenesis imperfecta, a very rare genetic disorder characterized by bones that break easily. With such close personal ties to this rare community, it has been one of Dina’s goals to work professionally in the rare disorder community. In fact, Dina says it was “serendipitous” that the Executive Director position became available, and she knew this would be the right fit.
“On behalf of the Board I’m thrilled to welcome Dina to the Moebius Syndrome Foundation. Her experience in the rare disorder community will help us continue moving forward with our mission”, says Vicki McCarrell, President and Co-Founder.
Dina is “looking forward to working with the Moebius community to expand the wonderful work of the Moebius Syndrome Foundation.”
On a personal note, Dina lives in Tucson, Arizona with her two sons, ages 10 and 12. They spend their spare time traveling and also training in Capoeira, a form of martial arts. Dina is looking forward to meeting many people in our Moebius family at the upcoming 13th Moebius Syndrome Foundation conference in St. Petersburg Florida. Again, please join us in welcoming Dina to our Moebius family!
About the Moebius Syndrome Foundation:
Founded in 1994, the Moebius Syndrome Foundation provides information and support to individuals with Moebius syndrome and their families. The Foundation promotes greater awareness and understanding of Moebius syndrome and advocates for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions. For more information on Moebius syndrome, the Foundation or becoming a member, please visit www.moebiussyndrome.org.