The Moebius Syndrome Foundation hosts the Scientific Research Symposium in conjunction with its conferences. These events bring together researchers and physicians from around the world to discuss advancements in scientific and medical understanding of Moebius syndrome.
If you would be interested in attending and/or presenting at the ninth Scientific Research Symposium scheduled to be hosted in Minneapolis, MN, on July 20, 2023, please contact Bryn Webb, M.D., research committee chair, to request an invitation.
The Moebius Syndrome Foundation is hosting its Ninth Scientific Research Symposium on July 20, 2023, in Minneapolis, Minnesota. This in-person and virtual event is open to the global medical and scientific community that may be interested in learning more about Moebius syndrome and current research being conducted. See the agenda for this event.
For an invitation or more information about this event, please contact Bryn Webb, M.D. at firstname.lastname@example.org.
View the 2022 Atlanta, GA agenda here
The eighth Moebius Syndrome Foundation Scientific Research Symposium was held as a hybrid event (virtual and in-person) on July 14, 2022, in Atlanta, GA. This meeting brought together researchers from across the globe, both in-person and virtually. It was a daylong event that served as a catalyst for collaborative work and moved us closer to finding the clinical characteristics of Moebius syndrome and new treatment options for its common symptoms.
In 2007, the Moebius Syndrome Foundation hosted the first Moebius Syndrome Foundation Scientific Conference, which brought together 32 researchers and physicians from nine countries. For two days, attendees presented their work on the genetics and treatment of the various aspects of Moebius syndrome, followed by discussions and agreement to work together to unravel the mystery of the cause(s) of Moebius syndrome.
The conference was funded by the Friends of the National Institute of Dental and Craniofacial Research (NIDCR), the Moebius Syndrome Foundation, and a grant from four institutes of the National Institutes of Health, including the National Institute of Neurological Disorders and Stroke (NINDS), the NIH Office of Rare Diseases (ORD), and the National Institute of Dental and Craniofacial Research (NIDCR).