Moebius Syndrome Foundation

Moebius Syndrome Research Symposiums

The Moebius Syndrome Foundation hosts the Scientific Research Symposium in conjunction with its conferences. These events bring together researchers and physicians from around the world to discuss advancements in scientific and medical understanding of Moebius syndrome.

If you would be interested in attending and/or presenting at the next Scientific Research Symposium scheduled to be hosted in Salt Lake City, Utah, on July 24, 2025, please contact Bryn Webb, M.D., research committee chair, to request an invitation.

Salt Lake City, UT

10th Scientific Research Symposium

The next Moebius Syndrome Foundation Scientific Research Symposium will be held on July 24, 2025 in Salt Lake City, Utah. This in-person and virtual event is open to the global medical and scientific community that may be interested in learning more about Moebius syndrome and current research being conducted. 

For an invitation or more information about this event, please contact Bryn Webb, M.D. at bdwebb@wisc.edu.

Past Symposiums

2023

Ninth Scientific Research Symposium - July 20, 2023

Minneapolis, MN

View the 2023 Minneapolis, MN agenda here.

2022

Eighth Scientific Research Symposium - July 14, 2022

Atlanta, Georgia

View the 2022 Atlanta, GA agenda here

The eighth Moebius Syndrome Foundation Scientific Research Symposium was held as a hybrid event (virtual and in-person) on July 14, 2022, in Atlanta, GA. This meeting brought together researchers from across the globe, both in-person and virtually. It was a daylong event that served as a catalyst for collaborative work and moved us closer to finding the clinical characteristics of Moebius syndrome and new treatment options for its common symptoms.

2021

Seventh Scientific Research Symposium - July 22, 2021

Virtual Event

View the 2021 agenda here. This event was a postponement of the 2020 Scientific Research Symposium. 

2018

Sixth Scientific Research Symposium - July 19, 2018

St. Petersburg, Florida

View the 2018 agenda here.

2016

Fifth Scientific Research Symposium - July 14, 2016

Long Beach, California

View the 2016 agenda here.

2014

Fourth Scientific Research Symposium - July 17, 2014

Bethesda, Maryland

View the 2014 agenda here.

2012

Third Scientific Research Symposium - July 12, 2012

Philadelphia, Pennsylvania

View the 2012 agenda here.

2010

Second Scientific Research Symposium - July 29, 2010

Broomfield, Colorado

View the 2010 agenda here.

2007

First Scientific Research Symposium - April 24 - 25, 2007

Inaugural Scientific Conference on Moebius Syndrome - Bethesda, Maryland

In 2007, the Moebius Syndrome Foundation hosted the first Moebius Syndrome Foundation Scientific Conference, which brought together 32 researchers and physicians from nine countries. For two days, attendees presented their work on the genetics and treatment of the various aspects of Moebius syndrome, followed by discussions and agreement to work together to unravel the mystery of the cause(s) of Moebius syndrome.

The conference was funded by the Friends of the National Institute of Dental and Craniofacial Research (NIDCR), the Moebius Syndrome Foundation, and a grant from four institutes of the National Institutes of Health, including the National Institute of Neurological Disorders and Stroke (NINDS), the NIH Office of Rare Diseases (ORD), and the National Institute of Dental and Craniofacial Research (NIDCR).

See the agenda from the inaugural event.