Congratulations to KiOwana Phillips, who has been elected as the Moebius Syndrome Foundation’s Vice President. Please see the statement below from KiOwana:

“‘The greatness of a community is most accurately measured by the compassionate actions of its members.’ — Coretta Scott King

I am deeply honored to serve as Vice President of the Moebius Syndrome Foundation. For over 20 years, I’ve been part of this community as a parent, advocate, regional coordinator, committee member, and board member. I’ve seen where we started, how far we’ve come, and I’m excited for where we’re headed together.

We serve a diverse and compassionate community of infants, seniors, and all ages in between, standing alongside families living with Moebius syndrome and honoring the lives of those we remember. Meeting individuals and families where they are, listening to their needs, and ensuring access to meaningful resources re
mains essential to our work.

I’m committed to leading with transparency, collaboration, and a steadfast focus on our mission. A few areas of focus are a workshop for teens of siblings with Moebius syndrome who have aged out of Sibshop, greater involvement in coordinating regional events, and innovative ideas and support for fundraising efforts. It is a privilege to continue serving this remarkable community, and I look forward to building an even stronger future together.”

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Image description: The Moebius Syndrome Foundation is pleased to announce our new Vice President. Congratulations! A professional headshot image of KiOwana Phillips. A quote from KiOwana: “I am deeply honored to serve as Vice President of the Moebius Syndrome Foundation. For over 20 years, I’ve been part of this community as a parent, advocate, regional coordinator, committee member, and board member. I’ve seen where we started, how far we’ve come, and I’m excited for where we’re headed together.” Moebius Syndrome Foundation logo.