Before Nash was born we knew he would have missing fingers on the left hand and would have bilateral clubbed feet. It wasn’t until he was 6 months old that he was diagnosed with Moebius syndrome. We never thought we would have a child with a rare neurological condition. It has been both a challenging and rewarding experience that has made us all stronger!

Nash has worked hard since the beginning of his life. He spent the first 3 weeks of his life in the NICU. Because of the paralysis on the left side of his face and the weakness in his throat, we had to learn how to feed him in a special way. During his first year of life he had 5-6 therapy and specialists appointments per week. He had occupational therapy for eating and strengthening his swallowing and sucking. He had physical therapy 2 times a week to master the skills of lifting his head, sitting up, crawling, and walking. He struggled at the beginning using the left side of his body – especially his left arm/hand. He had clubbed foot casting and surgery, and now wears braces to bed until he is 4. Now he is seeing a speech therapist and learning how to talk and communicate. 

 He has also seen many specialists including neurologists, ophthalmologist, audiologist, hand specialist, orthopedics, genetics, plastic surgeons, craniofacial surgeons, and sleep disorder doctors. He had to get a G Tube placed at 6 months of age due to silent aspiration. This was hard for Nash and our family because he worked so hard to master the skill of using a bottle and had such a good appetite. It was hard to take that away from him. Thankfully, after a year and many swallow studies and therapy we were able to remove it! He is now back to happily eating!

 Nash is now 2 years old. We are proud to say with VERY hard work his abilities are like any other kid his age. It just takes him extra effort and support. You will always find him proudly waving his little hand and saying hello to everyone he sees. He is never afraid of an unfamiliar face. He is outgoing, friendly, determined, strong, and so funny! He tries hard to keep up with his 4-year-old brother. He shows frustration at times but keeps going and never gives up. Nash is LIMITLESS!