A Guide for Healthcare Providers now available

We are excited to announce the arrival of our new resource, A Guide for Healthcare Providers.

This booklet is designed to help healthcare providers get a brief overview of Moebius syndrome and guidance on the types of specialist care a patient may require. The guide includes sections on eyes, speech and feeding, smile and blink surgery, common dental concerns, respiratory and pulmonology, orthopedic and physical therapies, and mental health. There is also a high level overview of Moebius syndrome and how to get a diagnosis.

Our Scientific Advisory Board was instrumental in the creation of this guide, and we gratefully acknowledge their contributions and volunteer time. Thank you to the authors:

Kathleen R. Bogart, Ph.D.

Gregory H. Borschel, M.D.

Hollis Chaney, M.D.

Renee Roy Hill MS, CC/SLP COM CLC

David G. Hunter, M.D., Ph.D.

Kathryn Kraus McClure, M.D.

Philip McClure, M.D.

Greg Osborne, DDS, D-ABDSM, FADI

Rhonda S. Robert, Ph.D.

Bryn Webb, M.D.

Download the guide now.

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