August 1, 2021- The Moebius Syndrome Foundation welcomes Jenny Whitman as its new Executive Director. Hired in January of 2018,  Jenny Whitman served in the role of Events and Programs Manager until August 1, 2o21 when she moved into the position of Executive Director. Her position is to help the Moebius Syndrome Foundation fulfill its vision and mission in providing support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome. Jenny will be working closely with the Board of Directors, volunteers, future staff, and key stakeholders to ensure smooth internal operations, that worthy goals are being implemented and met, and that the members of the Moebius community’s concerns and feedback are being heard and addressed. She is dedicated to helping the Foundation continue to grow and looks forward to this exciting work.

Read an official press release.