Kari has a bachelor’s degree in communication from the University of Wisconsin – Green Bay. Her passions in life are writing and connecting with people, so her career in writing articles has been a perfect choice. She has interviewed people of all different walks of life and enjoys hearing people’s stories and getting to share them with the world. Kari started out at the Moebius Syndrome Foundation in October 2023 managing social media, and her role has now evolved into also writing articles.

Tell us your name and position at the Moebius Syndrome Foundation.

Kari Storm, Communications Assistant

Why is it important for you to serve at the MSF?

I have been so extremely grateful to work for an organization that I resonate with and am super passionate about. I can say that I love my job, and it means a lot to know that I’m truly making a difference.

What does the Moebius Syndrome Foundation mean to you, personally?

I finally feel like I fit in. I feel a sense of connection and community. I’ve been able to get to know people in the Moebius community, and we just have so many great people. It has been because of the MSF that I’ve been able to connect with and even meet in person others who have Moebius.

What might the Moebius Syndrome Foundation community be interested to learn about you?

I am passionate about personal growth, and enjoy writing and speaking about my personal growth journey. I discuss topics such as living with Moebius syndrome, self-love, and the importance of being accepting and kind to others.

What do you want the Moebius syndrome community to know about your role and what you do?

I get the absolute pleasure of getting to interview people in the Moebius community and share their unique and amazing life experiences, through writing articles. I also help manage the MSF’s social media.

Anything else you would like to add? Any long term goals for the Foundation? Can community members reach out to you if they have any questions or comments about the Foundation/ideas they may have?

Working for the MSF has been one of the most joyful and fulfilling experiences of my life. I’m looking forward to getting to interview more and more people and getting to share their stories. I feel blessed to be able to do what I love!

Yes, people can feel free to reach out to me!