The parent of an adult daughter with Moebius, Dr. Kraus McClure has a long-standing interest in all aspects of life with Moebius syndrome. In addition, as a physician she is committed to advancing research into the therapeutics and mechanisms of the Moebius spectrum.
After obtaining a degree in biophysics from PennState, Kathryn attended the University of Pittsburgh School of Medicine, with additional certifications in internal medicine, allergy, and immunology. Now retired after 30 years in private practice, she is an avid gardener and loves to explore nature with her camera in hand. She lives in western Pennsylvania with her husband, daughter, and golden retriever, Misty.
Kathryn resides in Darlington, PA.
Tell us your name and position (executive committee, staff, board member).
Kathryn (Kathy) Kraus, Member of the Board
Why is it important for you to serve on the Board of Directors?
I want to “give back” to the MSF for what they gave to me as a mother of a daughter with Moebius: information about this rare disorder, a connection to other parents sharing this challenge, and hope for new knowledge about Moebius syndrome.
What does the Moebius Syndrome Foundation mean to you, personally?
In one word, unity. The Moebius Syndrome Foundation gives to all of us who care about this disorder a voice which in unison has a greater strength and impact. A voice for advocacy, a voice for understanding and research, and a voice to connect with each other.
What might the Moebius Syndrome Foundation community be interested to learn about you?
I am always thinking, “Why?”. I wonder about all the many aspects of Moebius, and how they all fit together. I am interested in basic science, with Moebius, and in the world in general.
What do you want the Moebius syndrome community to know about the Board of Directors and what we do?
The Board has many jobs to do to meet the diverse needs of the Moebius community. Staying connected and balancing those needs is an important part of our job. In addition, working to maintain a strong financial footing is critical to continue our work. We want everyone to feel that they can reach out to us with their concerns, and to know how much we all appreciate their support!
Anything else you would like to add? Any long term goals for the Foundation? Can community members reach out to you if they have any questions or comments about the Foundation/ideas they may have?
My long term goal for the Foundation is to continue to be the premier source for information about Moebius and to serve as a liaison for all aspects of this disorder. I would love to hear from our members about their stories, their questions and what they wonder!