Loralynne Evans joined the Moebius Syndrome Foundation in October 2021 to manage its conferences and events. With more than 15 years of experience with marketing and event planning, Loralynne has advanced into the role of providing direction for the Foundation’s marketing, as well as continuing to manage conferences and events. She is excited to bring this experience to the Moebius Syndrome Foundation and to connect with the community to plan incredible events and help expand their marketing efforts.
Loralynne lives with her husband, three kids, and two dogs. She loves hiking, gardening, traveling, and reading historical fiction.
Loralynne resides in Westminster, Colorado.
Why is it important for you to serve at the MSF?
With more than 20 years of experience in the events and marketing industries, I really want to work for an organization where I can use my experience to make a difference. Everything we do at the MSF is focused on providing resources, support, education and connection for members of the Moebius community. The needs of the community come first and foremost. I am proud to be a part of that.
What does the Moebius Syndrome Foundation mean to you, personally?
The Moebius community has become dear to my heart. I regularly find myself telling people about Moebius syndrome and spreading awareness about craniofacial differences. It has also opened my eyes more to disability and accessibility issues in our society.
What might the Moebius Syndrome Foundation community be interested to learn about you?
My husband and I live just north of Denver, CO with our three kids and two dogs. I love to travel and enjoy cooking international cuisine. When the weather is warm, I enjoy attending my kids’ sports events, gardening and hiking.
What do you want the Moebius syndrome community to know about your role and what you do?
I am responsible for planning all the conference details and monthly virtual events. I also work with Jenny and the Board of Directors to create our annual marketing, fundraising and communication plans. Then we divide those plans into monthly items such as the e-newsletters, social media posts, printed communications, etc.
Anything else you would like to add? Any long term goals for the Foundation? Can community members reach out to you if they have any questions or comments about the Foundation/ideas they may have?
I would love to see a day when we have a regional coordinator for each state and a regional event every year in each state. This would enable members of the Moebius community to more easily connect with each other regularly.
I am very interested and open to receiving ideas from members of the community. Please don’t hesitate to email me (events@moebiussyndrome.org) if you have an idea of a topic for a virtual event or suggestions on ways for the community to connect.