Monica chaired the Moebius Syndrome Foundation’s 2010 conference in Colorado, and she has played a key role in conference planning since then. She is the parent of three children, one of whom is a teen with Moebius syndrome.
Monica resides in Castle Rock, CO.
Tell us your name and position (executive committee, staff, board member).
Monica Woodall – Board Member
Why is it important for you to serve on the Board of Directors?
Being on the MSF Board is important for me to give back for all the support we received from the foundation when we first found out that Madison had Moebius syndrome in 1999. I also wanted to be a part of the MSF to assist in planning the conferences that I am very passionate about and look forward to every time we host one. I love watching new families attend their first conference.
What does the Moebius Syndrome Foundation mean to you, personally?
The MSF was a lifeline when we had no idea of what the future held for Madison. After attending our first conference in 2000 in Massachusetts, we found our Moebius family that would provide support, education, knowledge, lifelong friendships, and a forever family. Not to mention the peace of mind that Madison would be just fine!
What might the Moebius Syndrome Foundation community be interested to learn about you?
I wanted to get involved in the MSF community and mentioned to Vicki McCarrell that I would be interested in helping host a conference. Well, two years later I was standing on the podium welcoming everyone to Colorado as we hosted the 2010 MSF Conference. What a labor of love that was but it got me hooked into wanting to continue helping with the MSF and then joining the MSF Board that fall.
What do you want the Moebius syndrome community to know about the Board of Directors and what we do?
The MSF Board of Directors is an eclectic group of individuals that bring different skills to the Board. The MSF wants to support the families, educate, research, and above all else be a knowledge bank for families who need it the most during a time when they are looking for answers and support.
Anything else you would like to add? Any long term goals for the Foundation? Can community members reach out to you if they have any questions or comments about the Foundation/ideas they may have?
I have thoroughly enjoyed being on the MSF board throughout the years and loved being a part of the conferences. The conferences are, to me, invaluable and by far the reason I wanted to be on the Board. I would like to see how we can make conferences more attainable for everyone to attend, every time. Believe me when I say that is a topic of conversation we have all the time, and I hope we can come up with some creative ways of connecting everyone.
I would love to connect with anyone who has questions or would just want to talk about Moebius syndrome.
Email : monica@moebiussyndrome.org