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  • About Moebius »
    • What is Moebius syndrome? »
    • For the newly diagnosed »
    • For infants and children living with Moebius syndrome »
    • For young adults »
    • For adults living with Moebius syndrome »
    • For friends and relatives »
    • For professionals »
    • Treatment options »
    • Video introductions to Moebius syndrome »
  • Who we are »
    • Mission and History »
    • Foundation leadership »
    • Scientific Advisory Board »
    • Press room »
    • Our stories »
    • Financial Overview »
  • Support & Resources »
    • Moebius Syndrome Foundation Educational Scholarship Program »
    • Resources »
    • Connect with Others »
    • Newsletters »
    • Partner organizations »
    • Employment resources »
    • Financial resources »
    • Listing of healthcare service providers »
    • Dental concerns »
    • Moebius Syndrome Foundation Online Store »
  • Events »
    • 14th Moebius Syndrome Foundation Conference in Minneapolis, Minnesota »
    • 2020 Virtual Conference »
    • Moebius Syndrome Awareness Day »
    • Research symposiums »
    • MSF Regional Events »
    • Talkin’ Moebius Webinars »
    • Past Conferences »
  • Mini Conferences »
  • Get involved »
    • Join Now »
    • Donate »
  • Research »
    • Overview »
    • NIH research study »
    • Scientific Advisory Board »
    • Research symposiums »
    • Research articles »
  • Contact »
  • Home »
 
 
Moebius Syndrome Foundation

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Planned Giving

Whether you would like to put your donation to work today or benefit us after your lifetime, you can find a charitable plan that lets you provide for your family and support The Moebius Syndrome Foundation.

Gift in Your Will or Living Trust

A simple way to ensure critical research will continue

A gift in your will is a meaningful way to support Moebius Syndrome Foundation. It is also a simple, flexible and affordable way to support our work.

You can complete your gift by including just one sentence in your will. And because your gift is not realized until after your lifetime, it costs you nothing today. If your life or financial circumstances change, you can amend your gift or change your mind at any time.

No matter the size, your 

“I give to Moebius Syndrome , a nonprofit corporation currently located in Pilot Grove, MO or its successor thereto, ______________ [written amount or percentage of the estate for its unrestricted use and purpose.”.

Beneficiary Designations

An easy way to support The Moebius Syndrome Foundation

In just a few minutes, you can make a lasting impact and it won’t affect your current budget. Simply name The Moebius Syndrome Foundation as a beneficiary of one of your assets, such as the following:

  • IRAs or retirement plan
  • Life insurance policy
  • Commercial annuity

It only takes three steps to make this type of gift. Here’s how to name The Moebius Syndrome Foundation as a beneficiary:

  1. Contact your retirement plan administrator, insurance company, bank or financial institution for a change-of-beneficiary form.
  2. Decide what percentage (1 to 100) you would like The Moebius Syndrome Foundation to receive and name us, along with the percentage you chose, on the beneficiary form.
  3. Return the completed form to your plan administrator, insurance company, bank or financial institution.

Resources for Professional Advisors

 As a nonprofit organization, we share your values and take the same care when it comes to helping our donors plan charitable gifts. Please use these tools as you help your clients with their charitable plans, and feel free to contact us for more information or assistance.

Tools for Professional Advisors

Legal name: Moebius Syndrome Foundation      

Federal tax ID number:13-3753992         

Located in: P.O. Box 147 Pilot Grove, MO  65276

If your clients are interested in supporting The Moebius Syndrome Foundation with a gift in their wills, we have provided sample bequest language that they can bring to their estate planning attorneys.

“I give to Moebius Syndrome, a nonprofit corporation currently located in Pilot Grove, MO or its successor thereto, ______________ [written amount or percentage of the estate or description of property] for its unrestricted use and purpose.”.

Partner With Us

We understand that gifts to charities such as ours can be an important part of your clients’ overall financial and estate plans. That’s why we’re committed to working with you to ensure that your clients find the charitable arrangements that best meet their needs. We believe that charitable planning is a process that ideally involves the donor, professional advisors and our gift planning staff—all working together to arrange the best gift possible. Contact Dina Scalone anytime to discuss your client’s needs dscalone@moebiussyndrome.org (844-663-2487) X704.

Legacy Page

When you give a planned gift to The Moebius Syndrome Foundation, you’ll become a member of the  Moebius Legacy Society

Below, read about the donors who are ensuring the work of the Moebius Syndrome Foundation continues today and always.

Vicky McCarell

In the early 1990s, there were few resources available for new parents of children with Moebius syndrome.  When Vicky and Lori Thompson discovered each and that they lived 20 miles apart, The Moebius Syndrome Foundation was born!  Vicky is most passionate about support for new parents.  She has included MSF in her estate planning to ensure new parents will have a place for information and support!

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