Moebius Syndrome Foundation

Regional Events

Part of the Moebius Syndrome Foundation’s mission is to build connection and community between families and individuals with Moebius syndrome and similar facial differences. To support this initiative, we work with a team of volunteer regional coordinators throughout the United States to organize annual awareness, social, and fundraising events. 
 
The Moebius Syndrome Foundation provides resources, financial support and giveaways for these events. We can also help coordinate event marketing and presenters. 
 
To receive information about hosting an awareness or fundraising event, or to learn about becoming a regional coordinator, email events@moebiussyndrome.org. 
 

Regional Coordinators

If you would like to contact the regional coordinator in your area, please email events@moebiussyndrome.org.

 

Washington and Oregon – Destiny Bachman

Northern California – Paula Santana

Mountain Region (CO, WY) – Jan Fisher

North Central (MN, IA, ND, SD, WI) – Nikki Larsen

Midwest (NE, IL, IN, MO) – Chynika Spencer

Oklahoma and Kansas – Zayne Herron

Michigan – Laura Berge

Ohio – Leah Richter

Upper Northeast (MA, VT, NH, ME) – Angela Menard

Central Northeast (NY, NJ, RI, CT, DE) – Nate Russo

Pennsylvania and Maryland – Amanda Bridger

Alabama and Georgia – Claire West

Texas – Tina Michael

ID, MT, UT – Dallas Lewallen

If you don’t see your state listed, and you’d like to help plan events for individuals and families with Moebius syndrome in your region, please contact us at events@moebiussyndrome.org. We are actively seeking volunteers for the following states:

Alaska
Arizona/New Mexico
Arkansas/Louisiana/Mississippi
Florida
Hawaii
Kentucky/Tennessee
North/South Carolina
Virginia/West Virginia

Upcoming Regional Events

For upcoming regional events, please see our events page.

A young woman with Moebius syndrome and her mother work on painting a craft project