Regional Events

Moebius Syndrome Foundation

Part of the Moebius Syndrome Foundation’s mission is to build connection and community between families and individuals with Moebius syndrome and similar facial differences. To support this initiative, we work with a team of volunteer regional coordinators throughout the United States to organize annual awareness, social, and fundraising events.

The Moebius Syndrome Foundation provides resources, financial support and giveaways for these events. We can also help coordinate event marketing and presenters.

To receive information about hosting an awareness or fundraising event, or to learn about becoming a regional coordinator, email events@moebiussyndrome.org.

Regional Coordinators

If you would like to contact the regional coordinator in your area, please email events@moebiussyndrome.org.

Washington and Oregon – Destiny Bachman

Northern California – Paula Santana

Mountain Region (CO, WY, ID, MT) – Monica Woodall

Arizona, New Mexico, and West Texas – Monique Moreno

North Central (MN, IA, ND, SD, WI) – Nikki Larsen

Midwest (NE, IL, IN, MO) – Chynika Spencer

Michigan – Laura Berge

Ohio – Megan Weber

Upper Northeast (MA, VT, NH, ME) – Angela Menard

Central Northeast (NY, NJ, RI, CT, DE) – Jen Garvey

Pennsylvania and Maryland – Amanda Bridger

Southeast (FL, AL, GA) – Rebecca Maher

Upcoming Regional Events

For upcoming regional events, please see our events page.

A young woman with Moebius syndrome and her mother work on painting a craft project