If you would like to contact the regional coordinator in your area, please email events@moebiussyndrome.org. 

West Coast/Western U.S.
Arizona, New Mexico – Andrea Sweetwood-Smith
California (Northern) – Rafael Ortiz Marino and Liz Pivaral Ortiz
Colorado, Wyoming- Kacie Nievesmassol
Idaho, Montana, Utah – Dallas Lewallen
Oregon, Washington – Destiny Bachman

Midwest
Illinois, Indiana, Missouri – Chynika Spencer
Kansas, Nebraska, Oklahoma – Zayne Sharp
Michigan – Laura Berge
Ohio – Leah Richter

East Coast
Connecticut, Rhode Island – Nate Russo
Maryland, Washington, DC, Delaware – Shelby Kennedy
New York, New Jersey – Carrie Velazquez
Pennsylvania – Emily and Lily Cicconi
Virginia, West Virginia – Katrina Donovan

South
Alabama, Georgia – Claire West
Kentucky, Tennessee – Taylor Sims
North Carolina, South Carolina- Tuesdee Mawyer
Texas, Austin/San Antonio Region – Stacey Fulmore
Texas, DFW Region – Tina Michael

If you don’t see your state listed, and you’d like to help plan events for individuals and families with Moebius syndrome in your region, please contact us at events@moebiussyndrome.org. We are actively seeking volunteers for the following states:

Alaska
Arkansas, Louisiana, Mississippi
Southern California
Florida
Hawaii
Minnesota, Iowa, Wisconsin
North and South Dakota
Maine, Massachusetts, New Hampshire, Vermont