Research on Moebius syndrome has increased greatly in the last ten years.
Funding priorities of the Moebius Syndrome Foundation:
- To advance the diagnosis, treatment, and/or quality of life of people with Moebius syndrome and its associated conditions.
- To promote sustainable and comprehensive programs of research focused on Moebius syndrome by providing “seed funds” for larger research programs and grant submissions to larger funding organizations.
Moebius Syndrome Foundation Scientific Conference
The first Moebius Syndrome Foundation Scientific Conference was held in 2007 in Bethesda, Maryland. The conference was funded by the Friends of NIDCR, the Moebius Syndrome Foundation and a grant from four institutes of the National Institutes of Health, including the National Institute of Neurological Disorders and Stroke (NINDS), the NIH Office of Rare Diseases (ORD), and the National Institute of Dental and Craniofacial Research (NIDCR). This initial conference brought together researchers from 9 countries around the world and was the catalyst for the collaborative work which expands yearly.
The Scientific Symposium held in July of 2016 featured the work of more than 15 researchers and their associates. A collaborative NIH U1 grant to study Moebius syndrome and related facial weakness disorders was discussed at the Symposium and at the Moebius Syndrome Foundation Conference. The Moebius Syndrome Foundation is honored to work with these esteemed researchers.
The next Scientific Symposium will be held in July 2018.