Elizabeth Engle, MD
Boston Children’s Hospital, Harvard Medical School, Boston, MA
Elizabeth Engle received her MD from The Johns Hopkins School of Medicine with an internship and residency in pediatrics. She served as the neuropathology fellow at Massachusetts General Hospital, followed by a neurology residency in child neurology at Children’s Hospital, Boston. Trained in genetics research, Dr. Engle is now professor of neurology and ophthalmology at Harvard Medical School and an investigator of the Howard Hughes Medical Institute. Her lab has made significant finds in congenital cranial nerve disorders. She has received the E. Mead Johnson Award for Research in Pediatrics, The Sidney Carter Award in Child Neurology, and a Research Award for Vision from the Alcon Institute.
Ethylin Wang Jabs, MD
Mount Sinai Medical Center, New York, NY
Involved in medical genetics for at least 30 years, Ethylin Wang Jabs is Professor of Pediatrics and Professor of Developmental and Regenerative Biology at Mount Sinai School of Medicine. She is Vice Chair of the Department of Genetics and Genomic Sciences and is an Adjunct Professor of Pediatrics, Medicine and Surgery at Johns Hopkins University. Her expertise is in developmental genetics of congenital anomalies and she has conducted research on the molecular basis of human malformation disorders including Moebius syndrome. She has an active practice and sees patients with dysmorphology. Dr. Jabs has been on the Scientific Advisory Board for the Moebius Syndrome Foundation since 2002.
Marilyn Miller, MD
University of Illinois, Chicago, IL
Dr. Marilyn Miller is professor of ophthalmology at the University of Illinois. She has a commitment to international ophthalmology, and her research interests are in the area of teratology, craniofacial anomalies, unusual strabismus syndromes, thalidomide embryopathy, Moebius sequence and ocular genetics.
Richard J. Redett, MD
Johns Hopkins Hospital, Baltimore, MD
Dr. Richard Redett is director of the Johns Hopkins Cleft and Craniofacial Clinic and a pediatric plastic and reconstructive surgeon. His research interests are in peripheral nerve regeneration and surgery. His clinical interests include pediatric plastic surgery, facial paralysis, obstetric brachial plexus palsy, cleft lip and palate, and pediatric burn surgery.
Rhonda Robert, PhD
University of Texas, MD Anderson Cancer Center, Houston, TX
Dr. Rhonda Robert is a Professor of Clinical Psychology. She works at the Children’s Cancer Hospital, University of Texas MD Anderson Cancer Center in Houston, Texas, and previously worked at the Shriners Burns Hospital, in Galveston, Texas. She counsels persons who are emotionally adjusting to changes in physical appearance and functions, following illness or injury.
Sara Rosenfeld-Johnson MS, CCC-SLP
Sara Rosenfeld-Johnson, MS, CCC-SLP, is an internationally known speaker on the subject of Oral Placement Therapy (OPT). She specializes in the diagnosis and treatment of muscle-based disorders as related to speech clarity and feeding issues. In 1995, Sara founded TalkTools® as a speaker’s bureau and source for Oral Placement Therapy (OPT) and therapy tools. She has held seminars throughout the United States, as well as many locations in Canada, Europe, Australia, Africa, Latin America and Asia. Over the past 40 years, she has worked in public schools, hospitals, private practice and child development programs. In addition to her clinical commitments at SRJ Therapies in Charleston, SC, Ms. Rosenfeld-Johnson is the author of Oral Placement Therapy for Speech Clarity, Assessment and Treatment of the Jaw, OPT for /s/ and /z/, A Therapist’s Guide to Improving Speech Clarity in the Adult Population, The HOMEWORK Book, the Drooling Program, and many other educational materials.
Ronald M. Zuker, MD
The Hospital for Sick Kids, Toronto ON
Ronald Zuker was born in Niagara Falls, Canada and received his MD degree from the University of Toronto in 1969. After a rotating internship in Vancouver, BC and a brief period of family practice in Scarborough, he pursued his interest in Anthropology and Jungle Medicine, spending one year working with the Shipibo Indians in the Amazon basin – eastern Peru. He then entered the McGill University Training program in Surgery and completed the FRCSC in Plastic Surgery in 1976 through the Gallie Programme at the University of Toronto. He received a McLaughlin Travelling Fellowship to study microvascular surgery and pediatric plastic surgery in Japan, New Zealand, Australia and Europe. In 1978 he joined the staff of The Hospital for Sick Children as a consultant in Plastic Surgery, was appointed to the Department of Surgery of the University of Toronto as a lecturer in surgery in 1978, an Assistant Professor in 1982, Associate Professor in 1987 and Full Professor in 1994. He served as Chief of the Division of Plastic Surgery at SickKids from 1986-2002.
As a pediatric plastic and reconstructive surgeon, his primary interest is in facial reanimation and is the recognized worldwide authority. Dr. Zuker is currently co-director of the Facial Paralysis Programme at Sickkids. He also has a major interest in the management of cleft lip and palate and, in addition to his volunteer surgical commitment, serves on the Plastic Surgery Council of “Operation Smile.” He was Medical Director of SickKids Cleft Lip and Palate Program for over a decade.
Dr. Zuker is the past Chairman of the American Academy of Pediatrics, Section of Plastic Surgery, past president of the American Association of Pediatric Plastic Surgeons, and past president of the American Society for Reconstructive Microsurgery. He is very active in teaching and in the training of future reconstructive surgeons, and in the structuring of the Vascularized Composite Allotransplantation Team in Toronto.
His clinical focus is on Moebius syndrome, facial paralysis reconstruction, tissue expansion in children, and cleft lip and palate.
Moebius Syndrome Foundation – Scientific Advisory Board Members
Kathleen R. Bogart, PhD
Associate Professor, School of Psychological Science
Oregon State University
227 Reed Lodge; 2950 SW Jefferson Way
Corvalis, OR 97331
Gregory Borschel, MD
Co-Director, Facial Paralysis Clinic
The Hospital for Sick Children
555 University Avenue
Toronto, ON Canada M56 1X8
Hollis Chaney, MD
Children’s National Health System
111 Michigan Avenue NW
Washington, DC 20010
Jacqueline Diels, OT
Facial Retraining, LLC
PO Box 447
McFarland, WI 53558
David Hunter, MD, PhD
Opthalmologist in Chief
Professor & Vice Chair, Harvard Medical School
300 Longwood Avenue, Fegan, 4th Floor
Boston, MA 02115
Philip McClure, MD
University Orthopedic Center
590 Wakara Way
Salt Lake City, UT 84108
Marilyn Miller, MD
University of Illinois
Eye & Ear Infirmary
1855 W Taylor Street, Room 1771
Chicago, IL 60612
Renee Roy Hill, MS, CCP-SLP
Crossroads Therapy Clinic
1208 North Walnut Avenue
New Braunfels, TX 78130