SAF Test

Kathleen Bogart

Kathleen R. Bogart, Ph.D.

Associate Professor, School of Psychological Science, Oregon State University

Dr. Bogart is Associate Professor of Psychology and Director of the Disability and Social Interaction Lab at Oregon State University. She is a social/health psychologist specializing in ableism and rare disorders such as facial paralysis.

Borschel

Gregory Borschel, M.D.

Chief of Plastic Surgery, Riley Hospital for Children

Dr. Borschel is the Chief of Plastic Surgery at Riley Hospital for Children. His practice focuses on facial paralysis, pediatric nerve injuries, corneal neurotization, congenital hand surgery, and microvascular reconstruction.

Hollis Chaney, M.D.

Vice Chair of the Division of Pulmonary Medicine Children’s National Hospital

Dr. Chaney has been practicing in Children’s Division of Pulmonary Medicine for over 15 years. She is particularly interested in cystic fibrosis and rare genetic disorders including osteogenesis imperfecta, moebius syndrome and other skeletal dysplasias.

Jackie Diels

Jacqueline Diels, OT

Facial Retraining

Ms. Diels consults extensively with physicians and therapists worldwide with particular emphasis on developing strategies for treating synkinesis and specific conditions after facial reanimation surgery.

Dr. Elizabeth Engle

Elizabeth Engle, M.D.

Principal Investigator, Engle Laboratory Professor, Harvard Medical School

Dr. Engle is professor of neurology and ophthalmology at Harvard Medical School and an investigator of the Howard Hughes Medical Institute. Her lab has made significant finds in congenital cranial nerve disorders.

David Hunter

David Hunter, M.D., Ph.D.

Ophthalmologist-in-Chief, Children’s Hospital Boston

David G. Hunter, MD, PhD is Ophthalmologist-in-Chief and the Richard M. Robb Chair of Ophthalmology at Children’s Hospital Boston, President of the Children’s Hospital Ophthalmology Foundation, and Professor and Vice Chair of Ophthalmology at Harvard Medical School.

Philip McClure

Philip McClure, M.D.

International Center for Limb Lengthening

Philip K. McClure, M.D., is a board-certified orthopedic surgeon specializing in limb lengthening and reconstruction at the International Center for Limb Lengthening. His practice focuses on children and adults who require limb reconstruction and/or lengthening due to trauma, infection, congenital conditions and genetic syndromes.

Gregory Osborne

Gregory Osborne, DDS

Dr. Greg Osborne is a dentist and father of a Moebius Syndrome daughter. He and his wife have been involved with her care since 1993.

Rhonda Robert

Rhonda Robert, Ph.D.

Professor of Clinical Psychology, University of Texas, MD Anderson Cancer Center

Dr. Rhonda Robert is a Professor of Clinical Psychology. She works at the Children’s Cancer Hospital, University of Texas MD Anderson Cancer Center in Houston, Texas, and previously worked at the Shriners Burns Hospital, in Galveston, Texas. She counsels persons who are emotionally adjusting to changes in physical appearance and functions, following illness or injury.