Parents, caregivers, and educators must work together to help children with Moebius syndrome succeed in the classroom. Below you will find resources to help inform educators about Moebius syndrome, navigate IEPs, advocate for your child, and manage mental health.
A big thank you goes to the parents and partner organizations that have submitted their personal handouts and resources to share on this page.
Request a Back to School packet featuring Moe, the Moebius Syndrome Foundation mascot! We have 15 back to school kits available on a first come, first served basis. Each packet includes new passalong cards featuring Moe, a coloring sheet, stickers, A Guide for Educators, and a Moebius FAQ fact sheet. To request a packet, email: email@example.com
You can create your own Back to School Kit featuring Moe. Download the files to your computer and then print them on your home computer or through a local printing company, office supply store, or online printing company.
Check out our guide designed specifically to help educators and school staff better understand and support their new students with Moebius syndrome. This guide is available for download and can be emailed, or if you live in the United States, you can request that a physical copy be mailed to you by emailing firstname.lastname@example.org.
Back to School IEP/504 Tips and Resources
Presented by Destiny Bachman and Leah Richter Maldonado
July 17, 2022
Presented by Brittni Jones, Rebecca Maher, Debra Morton, and Leah Richter
August 9, 2021
Parents of children with Moebius syndrome navigate through educating other parents, teachers, school staff, and students by using a variety of tools offered below.
Use the templates below to create customized letters to parents or teachers to introduce your child and Moebius syndrome.
Examples from another parent:
PACER’s National Bullying Prevention Center actively leads social change, so that bullying is no longer considered an accepted childhood rite of passage. PACER provides innovative resources for students, parents, educators, and others, and recognizes bullying as a serious community issue that impacts education, physical and emotional health, and the safety and well-being of students.
These easy-to-carry cards are available to print and share at school or in the grocery store. They give a brief introduction to Moebius syndrome for those who have questions. We suggest downloading the link underneath the photos and saving the design you like best, then sending it to your favorite printer to make business card sizes (VistaPrint and Canva are popular printers). Each card has a description of Moebius syndrome on the back.
Let’s make picture day a little easier with these photographer educational handouts! Print off a one-pager or a card for your student, or their teacher, to hand to the photographer when it is time for a photo. The card will educate the photographer on Moebius syndrome and ask that they count “1-2-3” or instruct students to look at the camera instead of asking for a smile.
The Moebius Syndrome Foundation is proud to be a partner organization with both the Children’s Craniofacial Association and myFace. Both organizations bring the Wonder Program to schools to help spread the message about choosing kindness and being accepting of differences.
Please contact these organizations directly if you would like to see this special program brought to your child’s school.