Moebius Syndrome Foundation

Science & Medicine

The Moebius Syndrome Foundation (MSF) maintains an extensive network of scientific and medical support in order to work towards advancements in understanding the condition. This network is supported by the Scientific Advisory Board, an all-volunteer group of medical and science professionals who lend their expertise to the Foundation.

The Moebius Syndrome Foundation has provided more than $1.4 million in research funding as of 2021, for a total of 16 research grants since 2005.

Research Symposiums are held every two years in conjunction with the Moebius Syndrome Foundation conference. These symposiums focus on scientific and medical advancements with Moebius Syndrome.

The Foundation aims to “advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions,” per its mission.

The Scientific Advisory Board is an all-volunteer group of medical and science professionals who provide their expertise to the Moebius Syndrome Foundation. The council holds virtual webinars on their subject matter areas and answers questions from the community. The board meets in-person at the Moebius Syndrome Foundation Research Symposium and Conference.

The Moebius Syndrome Foundation hosts a Scientific Research Symposium in conjunction with conferences. These events bring researchers and physicians from around the world together to discuss advancements in scientific and medical understanding of Moebius syndrome.

The Moebius Syndrome Foundation is committed to funding research into the cause of Moebius syndrome and its associated conditions, per the mission statement. As of 2021, the Foundation has provided $1.4 million in research funding for 16 research grants.