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Listing of healthcare service providers

Listed below are some physicians and specialists that treat symptoms common in Moebius patients. This list is purely compiled by recommendations by Moebius patients and their families. This is not an endorsement on behalf of the Moebius Syndrome Foundation. In addition to reaching out to a professional you are interested in for more information, we suggest that you join private groups such as the Home for the Moebius Community or Moebius Moms and Dads Facebook groups and ask for personal experiences.

Please contact us at info@moebiussyndrome.org if you have recommendations for healthcare providers.

Ophthalmology

Boston Children’s Hospital, Department of Ophthalmology

300 Longwood Avenue, Fegan, 4th Floor

Boston, Massachusetts 02115

Contact: 617-355-6401

David Hunter, MD, PhD: http://www.childrenshospital.org/directory/physicians/h/david-hunter

Mary Whitman, MD, PhD: https://www.childrenshospital.org/directory/physicians/w/mary-whitman

Eric Gaier, MD, PhD: https://www.childrenshospital.org/directory/physicians/g/eric-gaier

Gena Heidary, Md, PhD: https://www.childrenshospital.org/directory/physicians/h/gena-heidary

Smile or Hand Surgery

Facial Paralysis Center
Beverly Hills, CA
Dr. Andre Panossian, MD, FACS
www.facialparalysiscenter.com

The Facial Nerve Institute
St. Louis Children’s Hospital and Washington University
St. Louis, MO
Dr. Alison Snyder-Warwick, MD
http://www.stlouischildrens.org/our-services/facial-nerve-institute

Riley Hospital for Children
Indiana University Health
Indianapolis, IN
Dr. Gregory Borschel, MD                                                                          https://www.rileychildrens.org/find-a-doctor/physician/gregory-h-borschel

Johns Hopkins Medicine
Plastic and Reconstructive Surgery and Pediatrics
Dr. Richard Reddett, MD
https://www.hopkinsmedicine.org/profiles/details/richard-redett

The Center for Advanced Facial Plastic Surgery
Beverly Hills, CA
Dr. Babak Azizzadeh, MD, FACS
www.FacialPlasticsBH.com

Massachusetts Eye and Ear
Boston, MA
Dr. Theresa A. Hadlock, MD
https://doctors.masseyeandear.org/details/164

Pediatric Pulmonologists

Children’s National Health System
Washington DC
Hollis Chaney, MD
www.childrensnational.org

Pediatric Dentists

The Children’s Hospital of Philadelphia
Philadelphia and various locations, PA
Sheldon Bernick, DDS, DMD
www.chop.edu

Woodinville Pediatric Dentistry
Woodinville, WA
Rama Oskouian, DDS, DMD
www.woodinvillesmiles.com

Dentists

Oakwell Dental Care
San Antonio, TX
Gregory A. Osborne, DDS, FADI
www.oakwelldental.com

Occupational Therapists

Facial Retraining Program, UW Health Research Park Clinic
Madison, WI
Jacqueline Diels, OT
www.uwhealth.org

Physical Therapists

Massery Physical Therapy
Glenview, IL
Mary Massery, PT, DPT, DSc
www.masserypt.com

Speech & Feeding Therapists

Talk Tools Inc.
Round Rock, Texas
Renee Roy Hill
www.talktools.com

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