Partner organizations
Partners · Other · International
PARTNERS
Children’s Craniofacial Association
myFace, the new face of the NFFR
National Organization for Rare Disorders – NORD
Positive Exposure – thank you to Rick Guidotti, founder of Positive Exposure, for the majority of photos on the Moebius Syndrome Foundation Website!
OTHER ORGANIZATIONS
American Association of People with Disabilities
Center for Parent Information and Resources (formerly NICHY)
Cleft Lip & Palate Foundation of Smiles
Craniofacial Foundation of America
Everylife Foundation For Rare Diseases
FACES: The National Craniofacial Association
Facial Paralysis and Bell’s Palsy Foundation
Foundation for Faces of Children
Many Faces of Moebius Syndrome
National Association of Councils on Developmental Disabilities
National Organization on Disability
PACER Center, Inc. – Minnesota Parent Training and Information Center
INTERNATIONAL ORGANIZATIONS
EURORDIS – Rare Diseases Europe
INTERNATIONAL MOEBIUS SYNDROME GROUPS
Argentina
Alejandra Alegre
alejandraxs@hotmail.com
Australia
Moebius Syndrome Foundation of Australia
Karin Thompson
kthompson9@bigpond.com
http://kidswithfacialparalysis-moebiussyndrome.webs.com/
Brazil
Support Group
Liana Ventura, MD
5581332050903
venturaliana@hotmail.com
Boneto Reinaldo
moebius@moebius.org.br
proseg2@uol.com.br
www.moebius.org.br
Belgium
ASBL Syndrome Moebius Belgique
Kaiser Christophe
www.syndromemoebius.be
contact@syndromemoebius.be
Colombia
Norma Hincape
mgarciber@yahoo.com
Denmark
Danish Moebius Syndrome Organisation
Bo Krogh Nielsen
ibbo@email.dk
England
Becky Deas
rebecca.deas@talk21.com
France
l’Association Syndrome Moebius France
info@moebius-france.org+(33) 6-64-36-06-45
http://www.moebius-france.org
Germany
Moebius Syndrom Deutschland e. V.
49 0 511 98453 55
www.moebius-syndrom.de
falco.schleier@googlemail.com
Holland
Support Group
Ben van Zanten, President
31 0 40 2800559
Ben@van.Zanten.name
info@moebiussyndroom.nl
Indonesia
Support Group
Andreas Kurniawan
ndreamon@yahoo.com
Israel
Support Group
Hella Edvi
04-6401595
hedvid@zahav.net.il
Italy
Associazione Italiana Sindrome di Moebius Onlus
Renzo DeGrandi
039 2726229
FAX 039 2724931
archi0713@hotmail.com
www.moebius-italia.it
Korea
Korea Moebius Syndrome Support Group
Meehyun Jin
#220-704
Munjung-Dong
Seoul, Korea
suzanne55@slingshot.co.nz
http://m.cafe.naver.com/mobiussyndrome
Mexico
Dr. Arianel Amador Lara.
aryamadorlara@hotmail.com
New Zealand
Support Group
Suzanne Woon
Hastings, New Zealand
suzanne55@slingshot.co.nz
Peru
Moebius Peru
Carlos Sanchez, President
Phone: 984-793143
http://www.moebiusperu.com
moebiusperu@gmail.com
Philippines
Philippines Support Group
Wennie O. Estrada
09157286544
09228822041
westrada_2006@yahoo.com
South Africa
Support Group
Kay Von Willingh
27 21 862 6902
kay@moebiussyndrome.co.za
http://www.moebiussyndrome.co.za/
Spain
Fundacion Sindrome de Moebius de España
Tel: 655 19 02 15
info@moebius.org
www.moebius.org
Sweden
Support Group
www.mobiusyndrom.se
Anette Book anette.book@hotmail.se (president)
and Torbjorn Johansson torbjorn@tjft.se (treasurer)
CONTACT US
844-MOEBIUS
(844-663-2487)
Moebius Syndrome Foundation
1312 17th Street #976
Denver, Colorado 80202
info@moebiussyndrome.org