Resources for Parents, Educators, and Students
A big “thank you” goes to the parents and partner organizations that have submitted their personal handouts and resources to share on this page.
Back to School Parent Panel
Presented by Brittni Jones, Rebecca Maher, Debra Morton, and Leah Richter | August 9, 2021
This discussion is a great starting point for parents with children just beginning Kindergarten, or for parents of children going into older grades. Our panelists are parents or children from Kindergarten – college, and have lots of advice to share!
Moebius Syndrome Handouts
All About Me: A handout for teachers and staff on the first day of school. This can be edited with your child’s information.
Kindergarten Letter for Parents this can be edited with your child’s information.
New! Moebius Passalong Cards to print out and share at school or in the grocery store. These give a brief introduction into Moebius syndrome for those that have questions. We suggest downloading the link underneath the photos and saving the design you like best, and then send it to your favorite printer to have business cards sizes made (ex. Vista Print is a printer we have used before). Each card has a description about Moebius syndrome on the backside.
Would you like more information about special education or 504 plans in school? Contact Brittni Jones, Elementary School Psychologist
Advocating at School
Coming soon! Dr. Rhonda Robert will be presenting a webinar on mental health in September 2021. Details coming soon!
Book for children with facial palsy (currently a free e-book!)
Bring the Wonder Program to your school! The Moebius Syndrome Foundation is proud to be a partner organization with both the Children’s Craniofacial Association and myFace. Both of these organizations bring the Wonder program to schools to help spread the message about choosing kindness and being accepting of differences. Please contact them directly if you would like to see this special program brought to your child’s school.
Other Organizations that Support Children and Families with Facial Differences
These organizations list resources to help children and parents address concerns including self-acceptance, bullying, mental health, and much more!
About Face (Canada)
Please be sure to check out the Support & Resources page on the Moebius Syndrome Foundation website for more suggestions on books, publications, and webinars.
Do you have a tool or resource that has worked well for helping your child with school? Please let us know so we can share it here.