Resources for Parents, Educators, and Students
A big “thank you” goes to the parents and partner organizations that have submitted their personal handouts and resources to share on this page.
Back to School IEP/504 Tips and Resources
Back to School IEP/504 Tips and Resources, presented by Destiny Bachman and Leah Richter Maldonado | July 17, 2022
Back to School Parent Panel
Presented by Brittni Jones, Rebecca Maher, Debra Morton, and Leah Richter | August 9, 2021
Transforming Lives: Creating Building Blocks for Home, School, and Social Connections for Children with Craniofacial Diagnosis, Presented by myFace
New! A Guide for Educators
In July 2022, The Moebius Syndrome Foundation produced a new guide specifically to help educators and school staff better understand and support their new students with Moebius syndrome. This guide is available for download and can be emailed, or if you live in the United States, you can request that a physical copy be mailed to you.
Moebius syndrome flyer for Educators and Classmates
Kindergarten Letter for Parents
New! Moebius Passalong Cards
These easy-to-carry cards are available to print out and share at school or in the grocery store. These give a brief introduction to Moebius syndrome for those that have questions. We suggest downloading the link underneath the photos and saving the design you like best, then sending it to your favorite printer to make business card sizes (ex. Vista Print and Canva are popular printers). Each card has a description of Moebius syndrome on the backside.
Moebius Passalong Card_Group Photo
Moebius Passalong Card_General Information
Moebius Passalong Card_Child Photo
Would you like more information about special education or 504 plans in school? Contact Brittni Jones, Elementary School Psychologist
Advocating at School
Parents’ flyer for Moebius Syndrome Awareness Day at School
Advocating for Your Child with a Rare Disease at Their School
Coming soon! Dr. Rhonda Robert will be presenting a webinar on mental health in September 2021. Details coming soon!
Book for children with facial palsy (currently a free e-book!)
Advice and Guidance for Children and Young People
Advice and Guidance for Parents & Families
Coping with People’s Reactions
Bring the Wonder Program to your school! The Moebius Syndrome Foundation is proud to be a partner organization with both the Children’s Craniofacial Association and myFace. Both of these organizations bring the Wonder program to schools to help spread the message about choosing kindness and being accepting of differences. Please contact them directly if you would like to see this special program brought to your child’s school.
Other Organizations that Support Children and Families with Facial Differences
These organizations list resources to help children and parents address concerns including self-acceptance, bullying, mental health, and much more!
About Face (Canada)
Children’s Craniofacial Association (USA)
Please be sure to check out the Support & Resources page on the Moebius Syndrome Foundation website for more suggestions on books, publications, and webinars.
Do you have a tool or resource that has worked well for helping your child with school? Please let us know so we can share it here.
Moebius Syndrome Foundation
1312 17th Street #976
Denver, Colorado 80202