Resources for Parents, Educators, and Students

A big “thank you” goes to the parents and partner organizations that have submitted their personal handouts and resources to share on this page. 

Back to School IEP/504 Tips and Resources

Back to School IEP/504 Tips and Resources, presented by Destiny Bachman and Leah Richter Maldonado | July 17, 2022

Back to School Parent Panel

Presented by Brittni Jones, Rebecca Maher, Debra Morton, and Leah Richter | August 9, 2021

Transforming Lives: Creating Building Blocks for Home, School, and Social Connections for Children with Craniofacial Diagnosis, Presented by myFace

New! A Guide for Educators

In July 2022, The Moebius Syndrome Foundation produced a new guide specifically to help educators and school staff better understand and support their new students with Moebius syndrome. This guide is available for download and can be emailed, or if you live in the United States, you can request that a physical copy be mailed to you.

Parent Handouts

Parent to Parent

Parent to Teacher or Staff

Moebius syndrome flyer for Educators and Classmates

All About Me:

Kindergarten Letter for Parents

New! Moebius Passalong Cards

These easy-to-carry cards are available to print out and share at school or in the grocery store. These give a brief introduction to Moebius syndrome for those that have questions. We suggest downloading the link underneath the photos and saving the design you like best, then sending it to your favorite printer to make business card sizes (ex. Vista Print and Canva are popular printers). Each card has a description of Moebius syndrome on the backside.

Moebius Passalong Card_Group Photo

Moebius Passalong Card_General Information

Moebius Passalong Card_Child Photo

IEP/Special EducationIEP_Roadmap_Understood

Understanding the IEP Process

Would you like more information about special education or 504 plans in school? Contact Brittni Jones, Elementary School Psychologist

Mental Health

Coming soon! Dr. Rhonda Robert will be presenting a webinar on mental health in September 2021. Details coming soon!

Book for children with facial palsy (currently a free e-book!)

Mental Health and Wellbeing

Advice and Guidance for Children and Young People

Advice and Guidance for Parents & Families

Coping with People’s Reactions

Reacting to Stares

Wonder Program

Bring the Wonder Program to your school! The Moebius Syndrome Foundation is proud to be a partner organization with both the Children’s Craniofacial Association and myFace. Both of these organizations bring the Wonder program to schools to help spread the message about choosing kindness and being accepting of differences. Please contact them directly if you would like to see this special program brought to your child’s school.

Other Organizations that Support Children and Families with Facial Differences

These organizations list resources to help children and parents address concerns including self-acceptance, bullying, mental health, and much more!

Changing Faces (UK)

About Face (Canada)

myFace (USA)

Children’s Craniofacial Association (USA)

Faces (USA)

Please be sure to check out the Support & Resources page on the Moebius Syndrome Foundation website for more suggestions on books, publications, and webinars.

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Do you have a tool or resource that has worked well for helping your child with school? Please let us know so we can share it here.