Adopted Dec 3, 2018
What Personally Identifiable Information is Collected
he Moebius Syndrome Foundation members who register for membership and individuals that sign up to receive e-communications voluntarily provide us with contact information (such as name and e-mail address). We may use this information for specific, limited purposes. You may always “opt out,” either now or at any time in the future if you do not wish to receive our messages.
he Moebius Syndrome Foundation uses your IP address to help diagnose problems with our server, to administer www.moebiussyndrome.org and www.moebiussyndrome.com, and for statistical metrics used to track website visitor traffic.
www.moebiussyndrome.org and www.moebiussyndrome.com uses “cookie” messages to automatically help provide better services. They remind us who you are and your preferences for our website based on what you’ve done and told us before. The “cookie” is placed in your computer and is read when you come back to our website. Cookies let us take you to the information and features you’re particularly interested in. They also let us track your usage of www.moebiussyndrome.org and www.moebiussyndrome.com, so we know which parts of our sites are most popular. You can reject cookies or cancel them by instructing your Web browser accordingly.
How Your Information May Be Used
We use your personal information to provide you with personalized service; to send e-mail alerts to you; to answer your requests; to process your membership application; etc. You may choose to opt out at any time, which will cease all communications from us. We may also use your information to track visitors of our website. This lets us see which of our features are the most popular so we can better serve our users’ needs. It also lets us provide aggregate data about our traffic (not identifying you personally, but showing how many visitors used which features, for example) to outside parties
The Moebius Syndrome Foundation does not provide, sell, or rent email addresses to anyone outside the organization.
www.moebiussyndrome.org and www.moebiussyndrome.com include links to external websites. These links do not fall under the www.moebiussyndrome.org and www.moebiussyndrome.com, domain, and The Moebius Syndrome Foundation is not responsible for the privacy practices or the content of external websites. Your use of any linked website is solely at your own risk.