After 25 years of leadership, Vicki McCarrell, the co-Founder of the Moebius Syndrome Foundation, is stepping down as President of the Foundation. The new President will be Jacob Licht, a 12-year MSF Board member who has served as Treasurer of the Foundation for the past five years.
Vicki McCarrell said, “It has been a tremendous pleasure serving as the president of the Moebius Syndrome Foundation the last several years. . I look forward to remaining on the Board of Directors and working with Dina, Jenny and our Scientific Advisory Board as well as the other board members. I have no doubt that the Foundation will continue to grow and prosper under Jacob’s leadership.” Jacob Licht assumed the role of President of the Moebius Syndrome Foundation effective January 1, 2020.
Jacob has a daughter with Moebius syndrome, and along with his wife hosted the 2016 Moebius Syndrome Conference in Bethesda, MD. Jacob lives and works in the Maryland suburbs of Washington, DC, and is a corporate development executive at a European vaccine company.
“My family has been associated with the Moebius Syndrome Foundation since our daughter’s birth seventeen years ago and have benefitted greatly from the Foundation’s important work. It is an honor to lead the Foundation and I am excited to continue the work that Vicki began and to help the Foundation continue to be the premier resource for the global Moebius syndrome community.”
Vicki’s role as co-Founder of the Moebius Syndrome Foundation extended far beyond the Foundation, and she was a true global ambassador for Moebius syndrome. Vicki said, “I treasure the relationships I have developed with men, women and children worldwide who have Moebius syndrome and their families, researchers, physicians, therapists, MSF board members, donors and other Moebius Syndrome Support Groups around the world as well as Face Equality International, NORD, the NIH and other craniofacial support organizations.” She will continue to play many of these roles and serve on the Board of the Moebius Syndrome Foundation.
The Moebius Syndrome Foundation will host the 14th Moebius Syndrome Foundation Conference in Minneapolis, MN from July 17-19, 2020 and expects nearly 450 people to attend the conference