We could not do it without our generous sponsors and donors!
SILVER SPONSOR – Texas Children’s Hospital
BRONZE SPONSOR– Children’s Craniofacial Association
Would you like to support this meeting? Please email Jenny@moebiussyndrome.org or see all options here: Ft Worth Mini-Conference Sponsor and Donation Options_Dec18
The Moebius Syndrome Foundation, the nation’s largest organization dedicated to providing information and support to individuals with Moebius syndrome, is hosting its 2nd Mini-Conference in Ft. Worth, Texas on November 8-9, 2019. This is an exciting new venture with a goal of bringing a taste of the national conference to families and individuals across the nation. These small meetings will be more affordable and accessible!
Mini-Conferences will be held will focus on support for families and individuals with Moebius syndrome, education, social activities, and some research opportunities. We invite you to join us. Thank you for your support.
Registration is Open!
- $50 for Adults and Teens ages 13+
- $25 participation fee for Tube Fed Adults and Teens ages 13+
- $25 for Children ages 3-12 (includes child care)
- $15 participation fee for Tube Fed Children ages 3-12
- $0 Children ages 0-2
- Registration rates will include a Welcome Coffee, Lunch, Snack, Dinner and Dance, and child care on Saturday
Reserve your hotel sleeping room
The meeting will be held at the Courtyard Ft. Worth at Alliance Town Center.
- 2 Breakfast vouchers will be provided for each sleeping room
- Complimentary WIFI
- $109 Discounted Group Rate
Reserving rooms/Payment: You and your travelers are able to start making reservations by either:
- The custom booking link
- Call the front desk at this property to reserve their room at (817) 753-6100 and state they’re with the “Moebius Syndrome Foundation Group”
- All methods of reservations will require a credit card to guarantee the guest room at the time of reservation.
|Here’s your reservation link you can use to make reservations:|
|Book your group rate for Moebius Syndrome Foundation Group
You will find the information for your online reservation link below. If you have questions or need help with the link, please do not hesitate to ask. We appreciate your business and look forward to a successful event.
|Moebius Syndrome Foundation Group|
|Start Date: Friday, November 8, 2019|
|End Date: Sunday, November 10, 2019|
|Last Day to Book: Thursday, October 9, 2019|
|Hotel(s) offering your special group rate:|
- Courtyard Fort Worth at Alliance Town Center for 109 USD per night
Check in is at 3PM and check out is 12 PM. We cannot guarantee an early check –in. If requested by one of your guests, we will do our best to accommodate depending on the occupancy.
Group Room Cancellations – All reservations must be booked by the cutoff date in order to guarantee the discounted group rate. The Hotel will not accept any cancellations or changes to the stay pattern within 72 hours prior to the arrival date. After the 72-hour prior to arrival date, if cancellation or changes to the dates of arrival or departure are made, the Hotel will charge non-refundable fees of the first night for the reservation’s stay pattern of room nights & taxes to the credit card on file, including reservations that check out early. All cancellations must go through Hotel sales department.
Join us at the Rodeo on Friday, November 8th
Get ready for a true Texas experience at the Ft. Worth Stockyards Rodeo!
- $13 for ages 13+
- $5 for ages 3-12 ; Free for ages 0-2
- Limited number of tickets will be available for reservation on the registration form
- Reserved Group Seating
- Rodeo begins at 8:00 PM
SCHEDULE OF EVENTS
Friday, November 8, 2019- Family friendly rodeo at the Ft. Worth Stockyards. 8:00 PM – 10:00 PM. Self-pay event.
Saturday, November 9, 2019- General Sessions, Child Care opens
Saturday, November 9 2019- Family-friendly Dinner and Dance from 6:00 – 10:00 PM (Dinner is for paid attendees only, but the dance is a free event; invite your family & friends!)
|DATE||November 9, 2019||TIME||9:00 AM – 4:30 PM|
|LOCATION||Courtyard Ft. Worth Alliance Town Center|
Ft. Worth Mini-Conference MEETING AGENDA – Updated June 17, 2019
|TIME||AGENDA DESCRIPTION||TO BE PRESENTED BY||LOCATION|
|8:00 – 9:00||Registration and Welcome Coffee|
|9:00 – 9:15||General Session opens: Welcome Remarks||Kevin Smant||vbnbvcxGeneral Session|
|9:10 -9:20||Bryn Webb- Research Introduction||Dr. Bryn Webb||General Session|
|9:20 -10:00||Self Esteem and Mental Wellness||Dr. Rhonda Roberts||General Session|
|10:00 –10:45||Life Skills||Michell Mitchell||General Session|
|10:45 – 11:00||Break||Foyer|
|11:00 – 11:30||Job Skills and Overcoming Discrimination||Steven Maldonado||General Session|
|11:30 – 12:15||Traveling with Special Needs||Debra Kerper||General Session|
|12:15 – 12:45||Awareness Events and MSAD||Dina Scalone and Derek White||General Session|
|11:30 – 12:30||Art Therapy and Chat for Children- TO BE CONFIRMED||Children’s Counselor||Child Care Room|
|12:45 – 1:345||Lunch|
|1:45 – 3:00||Just for Adults with Moebius Syndrome||Breakout Room #1|
|1:45 – 3:00||Just for Parents and Grandparents||Breakout Room #2|
|1:45 – 3:00||Therapy Dogs Visit Children||Child Care Room|
|3:00 – 3:15||Break|
|3:15 – aqA4:30||Makeover tips; Linked-in photos;
Men (or interested Ladies) Meet at the Bar for a Beer
|6:00 – 10:00||Dinner and Dance||General Session|
SPEAKERS and Presenters
Dina Scalone, Executive Director of the Moebius Syndrome Foundation
Dr. Bryn Webb, member of the Moebius Syndrome Foundation Board of Directors, and Scientific Advisory Board.
Steven Maldonado, MBA is a member of the Moebius Syndrome Foundation Board of Directors. His life goal is raising awarenee about Moebius syndrome.
I.T.S. Academy of Beauty will be providing professional tips and mini-makeover sessions, followed by photos, for anyone interested.