2019 Moebius Mini-Conference in Ft. Worth, Texas

We could not do it without our generous sponsors and donors!

GOLD SPONSOR – The Facial Paralysis Institute, Dr. Babak Azizzadeh, MD, FACS

SILVER SPONSOR – Texas Children’s Hospital

BRONZE SPONSOR– Children’s Craniofacial Association

Would you like to support this meeting? Please email Jenny@moebiussyndrome.org or see all options here: Ft Worth Mini-Conference Sponsor and Donation Options_Dec18

The Moebius Syndrome Foundation, the nation’s largest organization dedicated to providing information and support to individuals with Moebius syndrome, is hosting its 2nd Mini-Conference in Ft. Worth, Texas on November 8-9, 2019. This is an exciting new venture with a goal of bringing a taste of the national conference to families and individuals across the nation. These small meetings will be more affordable and accessible!

Mini-Conferences will be held will focus on support for families and individuals with Moebius syndrome, education, social activities, and some research opportunities. We invite you to join us. Thank you for your support.

EVENT DETAILS

Registration is Open!

Register Here

$50 for Adults and Teens ages 13+
$25 participation fee for Tube Fed Adults and Teens ages 13+
$25 for Children ages 3-12 (includes child care)
$15 participation fee for Tube Fed Children ages 3-12
$0 Children ages 0-2
Registration rates will include a Welcome Coffee, Lunch, Snack, Dinner and Dance, and child care on Saturday

Reserve your hotel sleeping room

The meeting will be held at the Courtyard Ft. Worth at Alliance Town Center.

2 Breakfast vouchers will be provided for each sleeping room
Complimentary WIFI
$109 Discounted Group Rate

Reserving rooms/Payment: You and your travelers are able to start making reservations by either:

The custom booking link
Call the front desk at this property to reserve their room at (817) 753-6100 and state they’re with the “Moebius Syndrome Foundation Group”

All methods of reservations will require a credit card to guarantee the guest room at the time of reservation.

Here’s your reservation link you can use to make reservations:

Book your group rate for Moebius Syndrome Foundation Group

You will find the information for your online reservation link below. If you have questions or need help with the link, please do not hesitate to ask. We appreciate your business and look forward to a successful event.

Event Summary:

Moebius Syndrome Foundation Group

Start Date: Friday, November 8, 2019

End Date: Sunday, November 10, 2019

Last Day to Book: Thursday, October 9, 2019

Hotel(s) offering your special group rate:

Courtyard Fort Worth at Alliance Town Center for 109 USD per night

Book your group rate for Moebius Syndrome Foundation Group

Check in is at 3PM and check out is 12 PM. We cannot guarantee an early check –in. If requested by one of your guests, we will do our best to accommodate depending on the occupancy.

Group Room Cancellations – All reservations must be booked by the cutoff date in order to guarantee the discounted group rate. The Hotel will not accept any cancellations or changes to the stay pattern within 72 hours prior to the arrival date. After the 72-hour prior to arrival date, if cancellation or changes to the dates of arrival or departure are made, the Hotel will charge non-refundable fees of the first night for the reservation’s stay pattern of room nights & taxes to the credit card on file, including reservations that check out early. All cancellations must go through Hotel sales department.

Join us at the Rodeo on Friday, November 8th

Get ready for a true Texas experience at the Ft. Worth Stockyards Rodeo!

$13 for ages 13+
$5 for ages 3-12 ; Free for ages 0-2
Limited number of tickets will be available for reservation on the registration form
Reserved Group Seating
Rodeo begins at 8:00 PM

SCHEDULE OF EVENTS

Friday, November 8, 2019- Family friendly rodeo at the Ft. Worth Stockyards. 8:00 PM – 10:00 PM. Self-pay event.

Saturday, November 9, 2019- General Sessions, Child Care opens

Saturday, November 9 2019- Family-friendly Dinner and Dance from 6:00 – 10:00 PM (Dinner is for paid attendees only, but the dance is a free event; invite your family & friends!)

GENERAL SESSION

DATE	November 9, 2019	TIME	9:00 AM – 4:30 PM
LOCATION	Courtyard Ft. Worth Alliance Town Center

Ft. Worth Mini-Conference MEETING AGENDA – Updated June 17, 2019

AGENDA
TIME	AGENDA DESCRIPTION	TO BE PRESENTED BY	LOCATION
8:00 – 9:00	Registration and Welcome Coffee
9:00 – 9:15	General Session opens: Welcome Remarks	Kevin Smant	vbnbvcxGeneral Session
9:10 -9:20	Bryn Webb- Research Introduction	Dr. Bryn Webb	General Session
9:20 -10:00	Self Esteem and Mental Wellness	Dr. Rhonda Roberts	General Session
10:00 –10:45	Life Skills	Michell Mitchell	General Session
10:45 – 11:00	Break		Foyer
11:00 – 11:30	Job Skills and Overcoming Discrimination	Steven Maldonado	General Session
11:30 – 12:15	Traveling with Special Needs	Debra Kerper	General Session
12:15 – 12:45	Awareness Events and MSAD	Dina Scalone and Derek White	General Session
11:30 – 12:30	Art Therapy and Chat for Children- TO BE CONFIRMED	Children’s Counselor	Child Care Room
12:45 – 1:345	Lunch
1:45 – 3:00	Just for Adults with Moebius Syndrome		Breakout Room #1
1:45 – 3:00	Just for Parents and Grandparents		Breakout Room #2
1:45 – 3:00	Therapy Dogs Visit Children		Child Care Room
3:00 – 3:15	Break
3:15 – aqA4:30	Makeover tips; Linked-in photos; Men (or interested Ladies) Meet at the Bar for a Beer		General Session
4:30	Adjourn
6:00 – 10:00	Dinner and Dance		General Session

SPEAKERS and Presenters

Dr. Rhonda Robert is Chief of Behavioral Pediatrics and professor of clinical psychology at The Children’s Cancer Hospital, University of Texas MD Anderson Cancer Center and previously Chief of Psychological Services at the University of Texas Medical Branch (UTMB) Shriners Hospital for Children.  Caring for children with health problems and their emotional and social well-being has been her career priority.  Dr. Robert’s workshop will address bullying, social problems and success. 

Dina Scalone, Executive Director of the Moebius Syndrome Foundation

Dr. Bryn Webb, member of the Moebius Syndrome Foundation Board of Directors, and Scientific Advisory Board.

Steven Maldonado, MBA is a member of the Moebius Syndrome Foundation Board of Directors. His life goal is raising awarenee about Moebius syndrome.

I.T.S. Academy of Beauty will be providing professional tips and mini-makeover sessions, followed by photos, for anyone interested.